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Communicating Health Risks: Lessons from the Zika Virus Outbreak

Examining risk communication during the Zika virus outbreak for pregnant women.

― 7 min read


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Communicating about health risks is very important, especially in the face of new diseases like the Zika virus. Good communication helps people understand what they are facing and how to protect themselves, especially when it comes to pregnant women and their babies. This article looks at how pregnant women learned about the Zika virus during the 2015-2017 outbreak and what they experienced regarding Risk Communication.

What is Zika Virus?

The Zika virus is a disease mainly spread by mosquitoes. Most people who get it will not show any symptoms, but if a pregnant woman gets infected, it can be serious for her baby. The virus can lead to issues like microcephaly, which is when a baby’s head is much smaller than expected and can be a sign of brain problems.

Importance of Risk Communication

In health care, risk communication means sharing information between Health Care Providers and patients about potential health risks and outcomes. It is crucial during an outbreak of a virus like Zika, where fears and uncertainties can be high. Effective communication involves giving clear and accurate information about the virus, the test results, and potential risks to the mother and the baby.

The Zika Virus Outbreak

During the Zika virus outbreak, many women became pregnant and had to deal with the potential impacts of the virus on their pregnancies. The Zika virus was first detected in Brazil and quickly spread to other countries, including Colombia and Puerto Rico. Each country had different ways of handling the situation, which affected how women received information and support.

How Women Learned About Zika

In Brazil and Colombia, many women who were pregnant during the Zika outbreak often found out about their Zika status too late or not at all. Some women were never tested, and others did not receive their test results until after their babies were born with issues. This lack of communication created confusion and fear.

In contrast, women in Puerto Rico had more organized systems in place. They had regular Zika tests as part of their prenatal care. Health workers explained the possible outcomes of the virus accurately and referred women to specialized care when needed. This approach allowed women to understand their situations better and prepare for potential challenges.

Personal Experiences

The experiences of women during the Zika outbreak varied greatly by country. In Brazil and Colombia, women often felt they were not given enough information about their health and the health of their unborn children. Some reported being told not to worry when they showed symptoms or were tested for Zika, making them feel dismissed and anxious.

For example, one woman in Colombia recounted going to the emergency room with a rash and being told her symptoms were like an allergy, downplaying her fears about Zika while pregnant. Many women in Brazil shared similar frustrations, feeling that they were not adequately involved in discussions about their health.

On the other hand, women in Puerto Rico reported more positive experiences. They were encouraged to bring a partner or family member when discussing their test results. This allowed for better support and understanding of the information shared, which included the risks associated with Zika.

The Role of Health Providers

Health care providers play a significant role in how information about Zika is communicated. In Brazil and Colombia, many providers did not provide adequate explanations of what Zika meant for their pregnancies. When women received their test results, the information was often brief or unclear, leaving many confused about the implications.

In Puerto Rico, health providers were more prepared and took the time to explain the situation to women. They discussed the potential consequences of Zika infection and arranged for further Testing and follow-up care. This allowed women to feel more informed and empowered regarding their health decisions.

Emotional Impact

Receiving news about a potential health issue during pregnancy can be very emotional. Women often felt scared, uncertain, and alone when they did not receive enough information. Many reported feeling distressed, especially when they knew their babies faced health challenges.

For women who received diagnoses late in their pregnancies, the emotional toll was significant. They often felt unprepared for the possible outcomes, impacting their mental health and the ability to bond with their newborns.

In contrast, women in Puerto Rico felt more supported. They reported that having clear information and being able to discuss it with their providers helped reduce their anxiety. Women expressed appreciation for compassionate care, which made a difficult situation feel more manageable.

Cultural and Religious Considerations

Cultural beliefs also played a role in how women perceived their situations. In many communities, the expectation of how a mother should respond to an adverse diagnosis can affect decision-making. Women expressed a need for their cultural values to be respected in discussions about their health and pregnancy outcomes.

For instance, some women felt that when health providers suggested abortion as an option, it was presented insensitively, leading to feelings of guilt and conflict. Women wanted time to process information and consider their options rather than feeling rushed or pressured into making decisions.

In Puerto Rico, discussions about pregnancy termination were handled more delicately, allowing women to consider their options in a supportive environment. This approach helped women feel less alone and more in control of their circumstances.

Challenges of Testing and Diagnosis

Access to Zika testing varied greatly by location. In Brazil and Colombia, there were reports of delays in receiving test results, and many women felt that they did not have the option to be tested at all. Some women were informed of their Zika status only after their babies showed signs of health problems.

This delayed or lacking communication often contributed to feelings of helplessness among women. They wanted to be proactive about their health and their babies’ health but often felt that they were not given the tools or information to do so.

On the other hand, Puerto Rico had a more integrated approach to testing. Regular screenings became part of routine prenatal care, ensuring that women could receive timely results and access the necessary follow-up care. This systematic approach improved women’s understanding and management of their health.

Preparing for the Future

The lessons learned from the Zika virus outbreak highlight the importance of better communication strategies in health care, especially during public health emergencies. It is crucial for health systems to establish clear protocols for testing and sharing results with pregnant women.

In addition, training health care providers on effective communication skills can help ensure that women receive the information they need about their health and the potential impacts on their babies. Women should feel supported and empowered in making decisions regarding their pregnancies.

Conclusion

Clear, accurate, and compassionate risk communication is essential in health care, especially during outbreaks like the Zika virus. Women need to feel informed and supported as they navigate potential risks to their pregnancies. By learning from the experiences of women during the Zika outbreak, health systems can improve communication strategies and better serve women and their families in future public health challenges.

By prioritizing effective communication and addressing cultural and emotional needs, health care providers can foster trust and understanding, helping women feel more in control during uncertain times. The goal is to create a health care environment where women can receive the information, support, and care they need to make the best choices for themselves and their children.

Original Source

Title: "I found out about Zika virus after she was born." Womens experiences of risk communication during the Zika virus epidemic in Brazil, Colombia, and Puerto Rico.

Abstract: IntroductionProviding accurate, evidence-based information to women with Zika infection during pregnancy was problematic because of the high degree of uncertainty in the diagnosis of the infection and the associated risk. The 2015-17 Zika virus epidemic overwhelmingly affected women in countries with limited access to safe abortion. Understanding womens perspectives on risk communication during pregnancy in the context of an emerging pathogen can help inform risk communication in response to future outbreaks that affect fetal or child development. MethodsWe conducted a cross-sectional qualitative interview study with 73 women from 7 locations in Brazil, Colombia, and Puerto Rico to understand womens experiences of ZIKV test and outcome-related communication during the ZIKV pandemic. We used thematic analysis to analyze the in-depth interviews. FindingsParticipants in Brazil and Colombia reported that the healthcare systems lack of preparation and organization in communicating ZIKV test results and associated adverse outcomes led to their feeling abandoned and alone in confronting the challenges of a ZIKV-affected pregnancy. In contrast, participants in Puerto Rico reported that the regular testing schedules and clear, well-planned communication between the care team and between providers and pregnant women helped them to feel they could prepare for a ZIKV-affected pregnancy. ConclusionCommunication of the risk associated with an emerging pathogen suspected to affect pregnancy and developmental outcomes is a fraught issue. Public health authorities and healthcare providers should work together in the interpandemic period to understand families preferences for risk communication during pregnancy in the presence of uncertainty and develop a community-informed plan for risk communication.

Authors: Lauren Maxwell, M. C. Miranda, C. H. Sanchez, E. P. Souto, E. A. Perez, G. C. Matta, M. Daza, G. L. Gama, C. Pimentel, M. Mercado-Reyes, A. M. A. Nino, L. M. Leegstra, E. Marban Castro, O. C. Manders

Last Update: 2023-12-22 00:00:00

Language: English

Source URL: https://www.medrxiv.org/content/10.1101/2023.12.21.23300353

Source PDF: https://www.medrxiv.org/content/10.1101/2023.12.21.23300353.full.pdf

Licence: https://creativecommons.org/licenses/by/4.0/

Changes: This summary was created with assistance from AI and may have inaccuracies. For accurate information, please refer to the original source documents linked here.

Thank you to medrxiv for use of its open access interoperability.

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