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Putting Clients First in HIV Treatment

Differentiated Service Delivery transforms HIV care by offering clients more choices.

Idah Mokhele, Vinolia Ntjikelane, Nancy Scott, Jeanette L. Kaiser, Allison Morgan, Amy Huber, Oratile Mokgethi, Timothy Tchereni, Wyness Phiri, Aniset Kamanga, Prudence Haimbe, Priscilla Lumano-Mulenga, Rose Nyirenda, Sophie Pascoe, Sydney Rosen

― 6 min read


Client-Centered HIV Care Client-Centered HIV Care HIV treatment options. Clients deserve real choices in their
Table of Contents

HIV treatment has come a long way, and one of the coolest ways it’s trying to be more user-friendly is through Differentiated Service Delivery (DSD) models. Imagine going to a restaurant where you can pick your favorite dish, ask for extra spicy, or even choose a dessert instead of a salad. Well, that’s the idea behind DSD for HIV treatment—giving people options about how they receive care.

What is DSD?

DSD is all about putting the person in charge when it comes to their treatment. Instead of the one-size-fits-all approach, DSD lets clients choose how often they visit the clinic, where they can pick up their medication, and other personal preferences that make their life easier. It’s like having a buffet instead of a set menu.

The Role of Shared Decision-making

A key ingredient in this process is shared decision-making between healthcare providers and clients. This means that clients are not just passively accepting what’s given to them; they get to weigh in on their treatment. Providers offer options, explain what they mean, and clients get to pick what works for them. It’s a win-win situation that aims to improve the outcomes for everyone involved.

History of DSD in Sub-Saharan Africa

Since 2016, many countries in sub-Saharan Africa have been on this DSD journey, following guidelines from big health organizations. Over the years, these countries have tried different models, some worked, some didn’t, and they learned along the way. You could say it was like a giant experiment in providing better care.

Current Models in Use

As of early 2023, many countries have settled on a few popular models for clients who have been stable on treatment for at least six months. Here’s a quick peek at what’s on the menu:

  1. Multi-Month Dispensing: Get multiple months of medication at once, reducing the number of trips to the clinic. It’s like stocking up on snacks for a movie marathon!

  2. Fast-Track Services: Skip the long lines and grab your medication in a jiffy. Who doesn’t love a fast pass to get the good stuff?

  3. Community Medication Pickup: Pick up your meds at a place closer to home, such as a local pharmacy. Convenience at its best!

  4. Home Delivery: Some clients can even have their medication delivered to their homes. Talk about service!

  5. Groups or Clubs: A less common model where clients can get their meds in a group setting or have them delivered. It's like a little club for health!

Clients can choose to stick with traditional care, which involves more frequent visits and less flexibility.

Wishes for More Choices

Now, you might think with all these options, everyone gets to pick what they want, right? Not so fast, my friend. Many clients reported feeling like they only had one choice or none at all. Sure, they might say they had a say, but when asked more closely, it turns out only a tiny fraction were truly offered a choice. This disconnect raises questions about how clients experience this so-called choice.

Survey Insights

A recent survey showed that in Malawi, only 4% of clients said they were offered a choice of model. In Zambia, that number was a slightly better 17%, and in South Africa, it peaked at a whopping 47%. It's clear that some countries are ahead of the game when it comes to client empowerment.

Interestingly, most clients were happy with their current model, even if they weren’t given a chance to choose. It’s almost like enjoying cake offered at a party but finding out there was a whole dessert buffet you didn’t know about!

What Providers Say

Providers generally think they are offering a world of options, but the reality for clients sometimes feels quite different. Most providers reported giving clients a choice between staying with traditional care or joining a DSD model. However, these options may not always be clearly communicated.

Providers often use their own judgment to determine how much choice to give clients based on individual circumstances. For example, factors like a client’s location or whether they have friends nearby can influence a provider’s recommendations. While this might seem practical, it can sideline the actual preferences of clients.

Variations Across Countries

The differences in experiences between countries can be striking. In South Africa, many clients felt they had a variety of options. They reported being informed about different models, allowing them to choose what worked best for them. Meanwhile, in Malawi and Zambia, many clients felt stuck with just one option or none at all. It seems like the choice buffet looks pretty different depending on where you are!

How Clients Find Out About Their Options

So how do clients learn about these various DSD models? Providers in all three countries usually share information through group education sessions and one-on-one talks. Posters and pamphlets also help, but that’s not always enough. Many clients reported they had not received detailed information, making it hard for them to understand their choices.

The Importance of Communication

Communication is key here. It’s essential that clients receive all the information they need about DSD options. Many providers suggested that increasing the amount of information shared, and doing so in a patient’s preferred language, could help clients make better decisions.

Suggestions for Improvement

Providers shared many thoughtful ideas for enhancing the DSD model experience. Suggestions ranged from early education about the models even before clients are stable to improving follow-up support. It’s all about ensuring clients feel informed and empowered.

Patient Happiness and Satisfaction

Interestingly, many clients reported being satisfied with their treatment experience, despite the lack of choices. This raises the question: is it the services themselves that clients are happy with, or are they simply content with any option that seems better than traditional care? It’s a bit puzzling and highlights the need for more research into what truly makes clients happy with their care.

The Bottom Line

In summary, the DSD model is designed to provide more personalized and client-centered care for HIV treatment. While providers believe they are offering choices, client experiences often tell a different story. Many clients want a real say in their treatment options, but the reality is that only a small number feel genuinely empowered to make that choice.

Moving forward, improving communication about choices and ensuring that clients are truly informed about their options could help bridge that gap. After all, when it comes to healthcare, everyone should feel like they’re at the buffet, not just receiving the leftovers!

Conclusion

Differentiated Service Delivery for HIV treatment aims to enhance client-centeredness. While progress is being made, there’s still a long way to go in ensuring that clients can genuinely choose their treatment options. By continuing to improve communication and support around these models, healthcare providers can help clients feel more in control of their health journey.

The need for research into how to make these choices dynamic and helpful over time is clear, and with the right strategies, the goal of truly client-centered care can become a reality. After all, who wouldn’t want a say in how they manage their health?

Original Source

Title: Are HIV treatment clients offered a choice of differentiated service delivery models? Evidence from Malawi, South Africa, and Zambia

Abstract: PurposeDifferentiated service delivery (DSD) models for antiretroviral therapy (ART) for HIV are intended to increase patient-centeredness, a concept that incorporates patient choice of service delivery options. We explored choice in DSD model enrollment at 42 public sector clinics in Malawi, South Africa, and Zambia. MethodsFrom 09/2022-05/2023, we surveyed ART clients and healthcare providers, asking ART clients if they had a choice about DSD model enrollment and providers about their practices in offering choice. We estimated risk differences for ART clients self-reported offer of choice using a Poisson distribution with an identity link function and report risk differences. We thematically analyzed open-ended questions and report key themes. ResultsWe enrolled 1049 clients (Malawi 409, South Africa 362, Zambia 278) and 404 providers (Malawi 110, South Africa 175, Zambia 119). The proportion of clients indicating that they had been offered a choice ranged from 4% in Malawi to 17% in Zambia to 47% in South Africa. Few clients (Malawi 10%, South Africa 19%, Zambia 13%) reported they had actively asked to enroll in a DSD model, but a majority (Malawi 66%, South Africa 80%, Zambia 59%) indicated they consented to model enrollment, even if enrollment was not presented as a choice. Over 90% of clients in all three countries reported that they were happy to be enrolled in their current DSD model. Among providers, 64% in Malawi, 80% in South Africa, and 59% in Zambia said they offered clients the choice to enroll in DSD or remain in conventional care. ConclusionsAs of 2023, relatively few ART clients in Malawi, South Africa, and Zambia said they were offered a choice about enrolling in a differentiated service delivery model, despite most providers reporting offering a choice. The value of patient choice in improving clinical outcomes and satisfaction should be explored further. Plain-Language SummaryO_ST_ABSPurposeC_ST_ABSDifferentiated service delivery (DSD) models for antiretroviral therapy (ART) enhance patient-centeredness by offering choices in service delivery options. We explored choice in DSD model enrollment at 42 public sector clinics in Malawi, South Africa, and Zambia. MethodsFrom 09/2022-05/2023, we surveyed ART clients and healthcare providers, asking clients whether they had a choice about DSD model enrollment and providers whether they offered this choice to their clients. We analyzed the data to identify differences in how clients reported being offered a choice. Results1,049 clients participated: 409 from Malawi, 362 from South Africa, and 278 from Zambia, alongside 404 providers (110 in Malawi, 175 in South Africa, and 119 in Zambia). 4% of clients in Malawi, 17% in Zambia, and 47% in South Africa reported being offered a choice to enroll in a DSD model. Few actively sought to join a DSD mode (Malawi 10%, South Africa 19%, and Zambia 13%)--but many consented to enroll even when not explicitly offered (Malawi 66%, South Africa 80%, Zambia 59%). Over 90% of all clients were happy with their current DSD model. Among providers, 64% in Malawi, 80% in South Africa, and 59% in Zambia offered clients the choice to enrol in a DSD model or remain in conventional care. ConclusionsMost ART clients in our study did not report being offered a choice to join a DSD model despite providers claiming they offered one. Further research is needed to understand how offering choices could improve health outcomes and patient satisfaction with care.

Authors: Idah Mokhele, Vinolia Ntjikelane, Nancy Scott, Jeanette L. Kaiser, Allison Morgan, Amy Huber, Oratile Mokgethi, Timothy Tchereni, Wyness Phiri, Aniset Kamanga, Prudence Haimbe, Priscilla Lumano-Mulenga, Rose Nyirenda, Sophie Pascoe, Sydney Rosen

Last Update: 2024-12-11 00:00:00

Language: English

Source URL: https://www.medrxiv.org/content/10.1101/2024.12.09.24317166

Source PDF: https://www.medrxiv.org/content/10.1101/2024.12.09.24317166.full.pdf

Licence: https://creativecommons.org/licenses/by/4.0/

Changes: This summary was created with assistance from AI and may have inaccuracies. For accurate information, please refer to the original source documents linked here.

Thank you to medrxiv for use of its open access interoperability.

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