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Fighting HIV in Miami-Dade: A Community Approach

A look at innovative strategies tackling HIV care disparities in Miami-Dade.

Sonjia Kenya, BreAnne Young, Sebastian Escarfuller, Deborah Jones-Weiss, Olveen Carrasquillo, Ana Riccio, Pan Yue

― 7 min read


HIV Care Solutions in HIV Care Solutions in Miami-Dade disparities in vulnerable populations. Community-driven strategies tackle HIV
Table of Contents

HIV/AIDS remains a pressing health issue in many communities, and Miami-Dade County is no exception. With a significant population of Black adults, this area faces serious challenges regarding HIV, especially among its Black residents. In this report, we will break down the complexities surrounding HIV care in Miami-Dade, focusing on the barriers, local population data, and innovative solutions aimed at improving health outcomes.

The HIV Situation in Miami-Dade

In Miami-Dade, Black adults make up 15% of the population but account for a staggering 64% of AIDS-related deaths. Despite the existence of effective treatments and prevention methods, the rate of new HIV infections remains alarmingly high. To put things into perspective, 1 in every 38 Black adults in the area is diagnosed with HIV, compared to 1 in 136 White adults and 1 in 129 Latin adults. This stark contrast highlights significant health inequities that need to be addressed.

The ultimate goal of HIV care is to achieve something called viral load (VL) suppression. This means that the level of the virus in a person’s body is so low that it becomes undetectable. To reach this goal, patients must adhere to antiretroviral therapy (Art) and remain engaged in ongoing medical care. Unfortunately, many Black individuals living with HIV in Miami encounter various challenges, including disjointed health care services and issues related to other health conditions.

Barriers to Care

Many social factors complicate the ability of Black residents to access effective HIV care. Issues such as poverty, homelessness, and unemployment contribute to the problem. For example, nearly half of the Black population in Miami lives in poverty, while over 40% are homeless. The unemployment rate among Black residents is also significantly higher than that of their White counterparts, creating a perfect storm of barriers to health care access.

Additionally, stigma related to HIV can further hinder individuals from seeking help. Many people feel embarrassed or fearful of judgment, leading them to avoid medical care altogether. This stigma not only affects individuals but also the broader community, as it contributes to lower rates of ART adherence and an overall lack of engagement in care.

The Role of Community Health Workers

One promising approach to break these cycles of disengagement is the involvement of Community Health Workers (CHWs). Think of them as a friendly bridge between the community and the healthcare system. They are not just health professionals, but also members of the community who understand the unique challenges faced by people living with HIV.

CHWs provide culturally relevant health education, assist individuals in navigating the health care system, and help tackle non-medical issues like housing and transportation. Their work has proven effective in improving care engagement and health outcomes among Black people living with HIV in Miami.

Motivational Interviewing: The Secret Sauce

To further boost the effectiveness of CHWs, researchers have suggested incorporating a technique called Motivational Interviewing (MI). This approach helps to encourage behavior change by tapping into a person's own reasons for wanting to make health improvements. Instead of pushing people toward change, MI guides them gently to discover their own motivation, making it a perfect fit for CHWs working with individuals who face numerous barriers.

The INSTACARE Intervention

To tackle these challenges in a more structured way, a new program called INSTACARE has been developed. This program aims to provide integrated support for Black individuals living with HIV in Miami-Dade. It combines the efforts of CHWs with a comprehensive plan to address not only health needs but also the social determinants affecting health outcomes.

Program Goals

INSTACARE aims to improve the health of Black individuals living with HIV by focusing on two main goals:

  1. Enhance ART adherence to achieve viral load suppression.
  2. Make sure individuals remain engaged with their health care throughout the process.

The program does this through a combination of community and clinical support, with CHWs leading the charge to bridge gaps in care.

Study Design

The INSTACARE program includes a research component to evaluate its effectiveness. It is set up as a randomized controlled trial, meaning that participants will be divided into two groups: one group will receive the CHW intervention, while the other will continue to receive standard care. The goal is to see if those in the CHW group achieve better health outcomes than those in the control group.

Phases of the Program

The INSTACARE intervention unfolds in three main phases:

  1. Activation (Months 1-3): CHWs meet with participants to assess their social conditions, personal challenges, and barriers to care. Together, they set personal health goals and work on strategies to improve ART adherence.

  2. Strengthening Commitment (Months 4-6): As patients grow more comfortable, CHWs shift their support from face-to-face meetings to remote assistance, reinforcing skills needed for ongoing care.

  3. Maintenance (Months 7-12): In the final phase, the focus is on sustaining the initial improvements. CHWs check in regularly, provide reminders for appointments, and continue to motivate participants to keep up with their health care.

Target Population

Participants in the INSTACARE program are Black residents of Miami-Dade, aged 18 or older, with a history of unmanaged HIV. The team works closely with Miami's largest public health system to recruit individuals who are facing significant barriers to care.

Data Collection and Analysis

The INSTACARE program places a strong emphasis on data collection. This includes tracking health outcomes, such as changes in viral load, and gathering information about the type of support provided by CHWs. Understanding how different modes of communication impact patient engagement gives valuable insights for the future.

Challenges and Solutions

One of the main challenges with this type of intervention is ensuring that participants remain engaged for the entire duration of the study. High dropout rates have been observed in similar research, which could skew the results. To mitigate this, participants are encouraged to provide contact information for two additional individuals who can be reached if needed. This support network aims to keep everyone connected, especially when life gets tough.

Also, the research team is aware that missing data can significantly affect the findings. They take steps to monitor and address any gaps that may occur over the course of the program.

Lessons from Previous Research

Lessons learned from past studies highlight the importance of continuous support and engagement. It has been observed that participants who receive ongoing assistance are more likely to stick with their treatment plans and achieve better health outcomes.

The program is not only about providing medical care; it also addresses the various social factors that influence health. By focusing on both medical and non-medical needs, the INSTACARE intervention seeks to create a more holistic approach to health care.

Future Outlook

As the INSTACARE program rolls out over the next few years, the research team hopes to gather substantial evidence regarding the effectiveness of this intervention. While it’s still early days, the initial feedback from participants has been promising.

If successful, the findings from INSTACARE could provide a model for other communities facing similar HIV care challenges. It could also inform policy changes aimed at improving health care access for marginalized populations.

Conclusion

The challenges surrounding HIV care in Miami-Dade, especially among Black individuals, are complex but not insurmountable. By employing strategies like Community Health Workers and Motivational Interviewing, it is possible to create a more effective health care system that addresses both medical and social needs.

The INSTACARE program exemplifies a proactive approach to tackling HIV in a community with heightened risks. As the study progresses, it will be interesting to see what insights emerge and how they can be applied to improve health care for many others. In the meantime, the battle against HIV continues, armed with a blend of compassion, understanding, and innovative strategies to bring about positive change where it matters most.

Original Source

Title: Improving HIV Outcomes in Miami's Black populations with clinic-based community health workers protocol: The integrated navigation and support for treatment adherence, counseling, and research (INSTACARE) randomized controlled trial

Abstract: Miami-Dade is an HIV epicenter where Black populations experience excess AIDS-related deaths due to poor medication adherence, which prevents achieving an undetectable HIV viral load (VL). A promising approach to improving HIV outcomes in Black populations has been the use of community health workers (CHWs). Evidence shows CHWs trained in motivational interviewing (MI) may further improve outcomes, however little data exists about Black CHWs trained in MI who support Black patients with HIV. While CHWs traditionally help address social determinants of health in nonclinical locations, there is less information on CHWs who provide support in clinical settings, which may result in even greater improvements in HIV outcomes. To examine effects of CHWs trained in MI who provide HIV care in both clinic and community settings, a randomized controlled trial (RCT) is being conducted in Miami-Dades largest public hospital. The Integrated Navigation and Support for Treatment, Adherence, Counseling, and Research intervention is a RCT of 300 Black adults with an unmanaged HIV VL (> 200 copies/mL). CHWs trained in MI are embedded into HIV clinical care teams and participate in hospital rounds with clinicians treating inpatients. Participants randomized into the CHW intervention arm receive 12 months of CHW-led health education and assistance with health care navigation and social services. The primary outcome is change in HIV viral load suppression at 12 months. Secondary outcomes include changes in medication adherence and social determinants of health. Study enrollment began in 2023 and will be completed by 2027. The first results are expected to be submitted for publication in 2025. INSTACARE is one of the first RCTs to examine effects of clinic-based support provided by CHWs trained in MI on Black populations with an unmanaged VL and will provide evidence on the impact of such strategies on medication adherence and social determinants of health.

Authors: Sonjia Kenya, BreAnne Young, Sebastian Escarfuller, Deborah Jones-Weiss, Olveen Carrasquillo, Ana Riccio, Pan Yue

Last Update: 2024-12-12 00:00:00

Language: English

Source URL: https://www.medrxiv.org/content/10.1101/2024.12.11.24318859

Source PDF: https://www.medrxiv.org/content/10.1101/2024.12.11.24318859.full.pdf

Licence: https://creativecommons.org/licenses/by/4.0/

Changes: This summary was created with assistance from AI and may have inaccuracies. For accurate information, please refer to the original source documents linked here.

Thank you to medrxiv for use of its open access interoperability.

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